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September
2010- Volume 4, Issue 2
Hospitalised
Children: Reactions of Siblings

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Nouran Katooa
RMIT University
School of Health Science
Disciplines of Nursing and Midwifery,
Melbourne
Australia
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| Summary
of Project
Hospitalisation of a sick child
is perhaps one of the most traumatic events a family
can face. Parents react swiftly to the trauma of a sick
child, and there is a considerable body of research
on the effects of hospitalisation on the child and its
parents. However, there is extant research on the effects
of hospitalisation, on the child's siblings. There is
little understanding of the connection of the siblings
to this traumatic occurrence whereby they can become
confused and frightened when seeing their parents' sad
and angry and frustrated reactions (Barlow & Ellard,
2006). The following project explores reactions and
coping mechanisms of siblings and parents of hospitalised
children. The aim of this project is to critically review
the literature in relation to the environment and the
effects of hospitalisation on the siblings' psychological
and physiological health, their behaviours and attitudes,
and responses to the illness of the brother or sister.
There is much evidence in the literature supporting
the relationship between hospitalised children and their
parents and siblings. Recommendations have been formulated
to improve and develop a set of guidelines that assist
the parents to find the best approaches that can be
used to help the siblings cope with the change of circumstance.
These recommendations include the anticipation of health
care provides of the challenges that might be experienced
by parents and siblings, the active participation of
parents and children in caring of the ill child and
the seeking of professional counselling services by
parents and siblings.
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INTRODUCTION
It is only natural for parents of hospitalised children to
want to be actively involved in activities aimed at ensuring
the well being of their children. A family is the basic unit
of every society and it provides members with the sense of
comfort, belonging and identity. It is well documented that
the role played by parents of children in paediatric care
is significant for the psychological and emotional well being
of the children. Additionally, parental involvement has also
been identified to be beneficial to the parents (Lam, Chang
& Morrissey, 2006).
In addition to those children under paediatric care due to
curable diseases, there are also the children who are admitted
with chronic diseases where the chances of survival are slim
or they might require extensive hospitalisation. Some of these
diseases require a greater emphasis on the quality of life.
Provision of the quality life to the child requires that the
parents invest more emotionally on the child. The implication
is that the parents are prone to become worn out emotionally.
Furthermore, there is also the danger of other siblings being
deprived of emotional support. Studies outlined by Foster
et al. (2009), more than half a million of the children in
the United States are currently living with life threatening
diseases. Furthermore, the study indicated that close to 50%
of the children living with life threatening diseases are
suffering from cancer. According to Foster et al. (2009),
substantial evidence actually indicates that the siblings
of children hospitalised for chronic illnesses are at risk
of being emotionally ignored by parents and being taken for
granted by health care providers. Nursing require the provision
of support services to both parents and siblings of the chronically
ill children to ensure that they are conversant with the patient's
condition. The support to the children should be done with
consideration of their capacity to understand and absorb the
shock and grief.
The project will identify an introduction of hospitalised
children, hospitalised children effects on parents and siblings,
the relationships between siblings, the factors influencing
parents and siblings to cope with hospitalisation, and well
critically review the changes in siblings' cognitive and emotional
behaviour in respect to hospitalised children and the responses
of their parents. In undertaking this project, an extensive
literature review was conducted using the RIMT library database,
ProQuest, Science Direct, PubMed and Google.
Statement of Problem
Children are weak and vulnerable. They establish great psychological
and emotional attachment to family, to their parents and relatives,
and especially to their brothers and sisters. Any change in
the normal setting, particularly a traumatic change when a
child falls ill or has an accident, can be devastating to
their self-confidence, can realign their relationships with
parents and siblings, and can have lasting effects on the
growing individual (Bhat & Rawat, 2004).
Most parents with terminally ill children usually become confused
and frustrated, uncertain how to respond to the situation
and they devote the majority of their time and energies to
attempting to resolve the situation at hand (Jones & Weisenfluh,
2003). In the process, they may fail to notice the changes
and challenges their other children are undergoing. Even if
the parents recognise the disintegration of the family relationships,
they may not be in an emotional state to attend to their other
children's psychological and sometimes physical needs. Treats
and recreational activities are dispensed with; children cannot
or will not seek their parents' reassurances in times of great
trial (Aujoulat, Simonelli & Deccache, 2006; Kyle &
Kyle, 2007). Some parents however may notice the change but
find no time to talk to them or find a lot of difficulty in
addressing the issue.
Long term and persistent unaddressed suppressed fears caused
by a hospitalised child are a danger to the health and social
behaviour of siblings. Frequently this is manifested by withdrawal,
where a child retains concerns because of fears of adding
to parents' anxiety or through perceptions of being ignored.
Psychological stress can be present through aggressiveness
and fear. Siblings of sick children become overactive or restless,
can feign or actively seek sickness as a means to retrieve
parents' attention (Craft, Sandel, & Wyatt, 1985). According
to Morgan and Attfield (2006), siblings of children with autism
are always worried that their parents will give the ill child
more attention.
It is therefore important to assess the environment that a
sick child creates in family relationships. The social and
psychological processes involved with those coping with sick
children can be determined through data-gathering and analysis
to identify causative factors which in turn can lead to coping
strategies in managing these distressing family environments.
The intention of this project is to identify and promote better
communication paths which parents could adopt to move toward
cognitive resolution of the hospitalised child by the siblings
by providing them with relevant information that would assist
them to handle delicate matters for the benefit of their children.
Aims of the Project
The objective of this project is to establish the emotional,
psychological, and health changes that siblings of hospitalised
children undergo. This is supported by the following goals:
- To identify coping strategies for parents so that the sick
child's siblings are not alienated and suffer harm the family's
unfortunate experiences with illness.
- To identify what the recommendation and approaches of coping
strategies are found in the literature that will assist the
parents and siblings in such difficult situations.
Background to the Study / Rationale
As outlined previously in this study is the fact that the
chronically ill child will draw much emotional and physical
support from family members. The support should be devoid
of any grudges or complaints, so that the child does not develop
feelings of being indebted to those providing support. Therefore,
the emotional condition of the family members is important
towards the provision of support to the child. Studies to
pertaining to the challenges faced by family members of chronically
ill patients have been conducted and the results have been
documented as well.
In a study conducted by Glasper and Richardson (2006), to
outline the experiences of siblings of sick children in the
paediatric care, it was established that a significant number
of children in the United States are spending time under paediatric
care and that around 3 million families were affected by the
need to provide care to the children. Unlike other studies
where data collection and analysis are always based on vague
and poorly defined options, the study grouped the results
into; "increased risk, no risk, and positive and negative
outcomes". The findings of these studies realized that
family members are significantly important in the well being
of a chronically ill child. It also realized that siblings
of chronically ill child may be affected especially when the
roles and responsibilities have to be adjusted for the sake
of the ill child. The two areas where siblings were affected
are having to take part in taking care of the ill child during
feeding, dressing and in some instances assuming adult responsibilities,
and siblings who may be affected by the fact that the ill
child is being given most of the attention and the parents
may have little or no time to address the concerns of the
siblings.
In a related study by Lindblad, Rasmussen
and Sandman (2005), that sought to establish the ways in which
parents taking care of disabled children may be empowered,
the findings realized that parents respond in varied ways
some of which may be unhealthy for the child and the parents.
For instance, some parents may develop the feeling that the
child does not deserve to be taken care of. The study analysed
the responses by 10 mothers and 6 fathers caring for 11 children
between the age of 6 and 11. Qualification to participate
in the study required that children under care were significantly
dependent on their parents due to some physical or mental
disability. Although, the children were not chronically ill,
the study would provide insight as to how parents may respond
to children who required extensive care due to one reason
or another.
Another research conducted
by Broome and Snethen (2001), the response of siblings when
their brothers or sisters were placed under clinical research
was documented. Various factors were realized and one significant
factor was that certain factors determined the level of understanding
of the situation that their brother or sister was going through.
Age of the sibling and the medical condition were identified
as the two most recurring determinants. The study realized
that siblings played an important part in the alleviation
of stress among themselves. This occurred as a natural response
that was not only eminent during illness, but also during
normal conditions. The research adopted favourable conditions
where siblings were interviewed by paediatric specialists
and the age of the siblings were between 7 and 21 years. The
research also realized that there were three areas of concern
for the siblings whose brothers or sisters were undergoing
research. The areas included their overall understanding and
interpretation of the research, ethical implications of the
research, communication methodology employed by the health
care and the way the research affected the normal routines
in their respective families. This research provides evidence
that siblings require attention by care givers to help them
in understanding of the medical condition affecting their
brother or sister. Furthermore, the siblings are always concerned
how the illness of a brother or sister may affect the family
routine in general.
A study by Mitchell and Courtney
(2004), which sought ways to reduce the anxiety and uncertainty
experienced by family members due to transfer to or from the
Intensive Care Unit (ICU), realized that the anxiety and uncertainty
experienced were due to a number of reasons. The first one
was that most families were not conclusively aware of the
reasons behind the transfer and the implications following
such transfers. Secondly, in the ICU and the other normal
wards were characterized by different conditions ranging from
the level of care provided to the children and the equipments
used. Therefore, family members may feel that the children
will not be catered for properly after being moved from the
ICU. Among the findings of the research was that the anxiety
experienced had nothing to do with the physical environment,
but as due to the diagnosis conducted. The implication of
the research is that family members need clarification on
certain medical procedures to alleviate anxiety and uncertainty
that may ensue. This study implies that even in instances
where siblings are not actively involved, they may sense the
anxiety and concern being experienced by parents and subsequently
become depressed especially when the situation is not explained
to them.
In a study conducted by Huizinger et al. (2004), to establish
the factors that enabled adolescents and siblings to cope
with cancer more effectively and thereby improving their quality
of life, it was realized that the environment played a critical
role. Analysis of the responses realized that the siblings
were also affected by the environment where their brother
or sister was in. Therefore, it is also to take into account
the environment of hospitalisation when seeking to address
the needs, concerns and siblings. The hospital environment
may either alleviate or worsen the anxiety felt by siblings.
Anxiety may be evidenced by
refusal of the siblings to visit their hospitalised brother
or sister.
An additional study conducted in
Sweden by Kristofferzon, Lofmark and Carlsson (2005), to establish
how men and women respond differently one month after myocardial
infarction of their child, it was realized that both men and
women were affected socially and emotionally by the condition
of the child. However, the two groups differed in terms of
where they mostly got their social support and how they coped
with the situation. Women employed a more evasive and supportive
coping mechanism and perceived that psychological dimensions
of the disease as presenting a major challenge as compared
to men. Therefore, such varied mechanisms of response as dictated
by age should be placed into account when seeking to provide
holistic support to parents with chronically ill children.
These studies substantially provide evidence that parents
and siblings of a chronically ill child are significantly
affected by the child's condition. Parents and siblings are
affected physically, emotionally and even socially. The parents
are affected in terms of not being able to cater for the child
effectively as a result of the illness, anxiety and concern
for the child's condition and the way the hospital is responding
to the condition, balancing between taking care of the child,
being available for other children an attending to their work,
and having the capacity to hold the family together during
the challenging experience. However, the siblings are also
experience challenges in terms of anxiety on whether the medication
being given is appropriate, concern over how the condition
is going to affect the family routine, having to depend on
their parents less and less in terms of emotional support
and other forms of support, development of anger towards the
ill child and finally having to revert to unhealthy ways for
coping with the situation.
Hospitalised Children Effects
on Parents and Siblings
Parents' Reactions
Most chronically ill children require specialised care due
to the delicate nature of children and due to the condition
that the disease puts the child in (Bhat & Rawat, 2004).
Some chronic illnesses incapacitate children either fully
or partially and parents are often required to take extra
care when performing duties such as; breastfeeding, changing
and washing. In addition, parents are also required to ensure
that they adhere to medication in instance where the child
is recovering at home. Apart from the physical support the
child may also require is additional emotional support to
prevent depression that may be associated with the medication.
As outlined by Smith (2004), parents of children in Hip Spicas
face difficulties ranging from breastfeeding and having close
physical contact and therefore they are at risk of experiencing
social and emotional problems due to frustrations.
The feelings of frustrations originate
from the fact that the parents are not able to effectively
care for their children and also due to the detachment from
their children (Barlow et. al, 2008). In cases where the chronic
illness is associated with disability, the parents are required
to balance on emotionally and physically being available for
the sick child and attending to the needs of the siblings
and attending to their normal duties such as going to work.
All these responsibilities may leave the parents fatigued
and emotionally drained. Therefore, parents find themselves
not being able to effectively care for the other siblings
and they may also not be able to be productive in their work
places. Frustration may also stem from the fact the parent
may feel that the health care providers are not giving the
child the care deserved (Hardy & Prior, 2001). Concerns
may be in form of the environment the child has been placed.
This is because some environments worsen the symptoms in terms
of pain and discomfort. Different conditions require specialised
care and it is important that this fact is put into consideration.
The parent may also be frustrated when their questions are
ignored or are not answered conclusively (Ramritu & Croft,
2009, Rutter & Taylor, 2002).
According to Ramritu and Croft (2009),
the most frustrating aspect of a child's illness to the parents
is the state of uncertainty and the fluctuating condition
of the child. The parents might experience anxiety and even
fear for the child. This is because the condition of the child
that may fluctuate in terms of progress and the parent may
also experience the fluctuation between hope and hopelessness.
According to Cullen and Barlow (2004), parents with children
with disabilities are more prone to depression as compared
to their counterparts whose children are experiencing normal
development. The psychological and physiological condition
of the parents is expected to affect the siblings significantly.
Although much research has been on the affect of hospitalisation
children on their parents, emerging evidence suggest that
children are even more affected (Armstrong-Dailey & Zarbock,
2009). Research has established that siblings are affected
by their parents' condition, the condition of the sick child
and the resultant disruption in family routine. Knowingly
or unknowingly parents continually find themselves overlooking
the needs of the siblings while concentrating on the sick
child (Kyle & Kyle, 2007).
The realization by the parents that
they have a child that has been hospitalised generally goes
through stages. First, there is the aspect of denial, followed
by self blame and then acceptance. Denial is always characterized
by the perception that it is impossible for their child to
have such an illness. As outlined by Brannon and Feist (2009),
this is a general reaction when people are faced with a challenge
they feel is beyond their capacity. During the denial stage,
both parents are usually draw strength from one another. However,
during the self blame stage, the parents are always taking
their frustrations upon each other. It is during this instance
that the fear of the family breaking up is most evident on
the siblings. During this period, the parents will concentrate
more on attacking each other and striving to be the innocent
one in the situation. In most instances, the sick child and
the siblings may be drawn into the tension.
Siblings' Reactions
Sibling reaction to hospitalised brothers or sisters may be
subtle and therefore prone to be ignored by the parents and
caregivers. In most instances, siblings are left in the dark
as the parents and care givers assume that they would not
understand or it would be better for them if they do not know
(Doherty, 2009; Jolley, 2010).
There is substantial evidence supporting
the fact that when a child is hospitalised, it is not only
the hospitalised children and the parents who are affected
with this condition, but the siblings as well (Stoneman, 2005).
A family is a close knit society where members derive identity
and support of different kinds. The family is the ultimate
place that a person turns to during trying emotional and psychological
times due to the high levels of understanding and intimacy
(Glasper & Richardson, 2006).
According to Bhat & Rawat (2004), siblings of a hospitalised
children may be at a risk of contracting the same disease
in a situation when the disease in contractible. This is because
when parents visit their sick child, they usually allow siblings
to accompany them. The situation is further worsened by the
fact that siblings share the same hereditary and environmental
factors. Instances, where the disease is not communicable,
siblings may experience feelings of fear and anxiety of contracting
the disease during visits when the situation is not explained
to the conclusively by their parents and nurses.
There are strong emotional foundations
that members build by the virtue that they share in their
moments of grief and happiness (Giallo & Gavidia-Payne,
2006). Therefore, when a member of the family becomes ill,
it becomes the responsibilities of all family members to gather
all their emotional strength in support of the ill member.
The situation places stress upon the foundation and it is
important that all family members understand that things will
have to be change. Siblings are bound to respond differently
to an ill child and various factors have been identified as
contributory. These factors include age and sex. For instance,
during adolescent when children are already experiencing hormonal
fluctuations and dealing with emotional conflicts, it is unlikely
that they will participate actively. The participation by
siblings may occur in various aspects and various behaviours
may be observed. The constructive behaviours include; being
worried of the condition of the ill child, sharing in sorrow
with other family members and the ill child, providing assistance
to the ill child and to other family members, finding information
on the condition and sharing it with other members, showing
maturity in dealing with the situation, and showing responsibility
being obedient to the parents (Johansson, Fridlund & Hildingh,
2004). Destructive behaviours that may be adopted by the siblings
include; anger projected at the ill child, complaining of
lack of attention from the parents because much attention
has been directed to the ill child, getting overtly anxious
about losing the ill child or the family being disintegrated,
being emotionally destabilized and as documented siblings
may also revert to increased appetite as a way of responding
to the situation (Johansson, Fridlund & Hildingh, 2004).
Relationships between Siblings
Critical illness of a child affects all members of the family,
including well brothers and sisters. Stress in siblings lives
results from changes in parental behaviors, care giving arrangements,
and family relationships (Barlow & Ellard, 2006). These
changes, along with limited understanding and information
about the crisis, create feelings of confusion, loneliness,
jealousy, and sadness, as well as physical symptoms and behaviour
changes. They may also notice increased moodiness, behaviour
changes and school difficulties.
When a child in the hospital, everyone
is affected, especially brothers and sisters. Children who
are hospitalised often receive more attention, special treatment
and gifts. Brothers and sisters can experience many feelings
as they try to understand and deal with the change in family
life and routines (Young, 2007).
It's normal for healthy siblings
to undergo the following reactions:
- Worry that his/her sister or brother will die.
- Fear that they or other loved ones will catch the sibling's
disease
- Feel guilty because they are healthy and can enjoy activities
that the sibling cannot
- Be angry because parents are devoting most of their time
and energy to the sick sibling
- Feel neglected and worried that no one in the family cares
- Resent the sibling who never has to do chores
- Resent that the family has less money to spend now because
the sibling is sick
- Be nostalgic for the past (wishing things could be like
they were before the illness)
- Feel residual guilt for being "mean" to the sibling
in the past
- Experience generalized worry and anxiety about an uncertain
future
The way siblings express their needs
will vary considerably; some may act out, some may try be
the perfect child, and many will do both. Most studies find
that siblings of children with cancer are not at any increased
risk for mental illness, although they may be at greater risk
for behavioural and emotional manifestations of their distress
(Huizinga et. al, 2005).
Factors Influencing Coping with
Hospitalisation
Factors Influencing Response by Parents
Nature of the Illness
Different illnesses present different challenges and require
varied level of emotional and physical care by parents. Some
illnesses limit the level which the child and the parent can
interact and will therefore has an effect on the relationship
between the two. For instance, some chronic illnesses may
limit the contact that the child can have with the parent
due to reduced immune capacity, which places the child at
risk. According to Rutter and Taylor (2002), any condition
that severs or reduces the relationship between the parent
and the child may place the esteem of the parent at risk.
For example, some conditions place challenges on the mother
during breast feeding while other may lead to pain by the
child when close contact s established. The nature of the
disease may also determine the parents' response because some
chronic diseases are well documented and researched and the
parent may already be aware of the challenges that they may
encounter when providing care. However, other diseases are
not well documented and the parents may constantly need to
consult doctors with regard to the progress and the medication.
Such situation may cause the parents to be anxious and uncertain.
In addition, different conditions may require different levels
of physical, social and emotional support. Illnesses that
incapacitate the child will require much physical support
than an illness that predisposes the child to social stigma
such as mental illness (Ramritu & Croft, 2009).
Age of the Child
The age of the child is important in the sense that children
at different ages exhibit varied levels of dependency when
they are chronically ill. Furthermore, the children may also
have different levels of understanding for their condition.
A chronically ill child of 12 years may have the capacity
to control bowel movement and may therefore not require the
parents to continually change them. However, a 2 year old
child with the same condition will not have control and therefore
the parents will be constantly required to change the child
in the case where the children are being taken care of at
home. Furthermore, as outlined by Hardy and Prior (2001),
attachment of children with their parents reduced by an increase
in the child age. Therefore, younger children who are more
attached to their parents will
require more attention than older children who are comparatively
less attached.
Gender of the Parent
As outlined by Kristofferszon, Lofmark and Carlsson (2005),
mothers and fathers of chronically ill children respond differently
to the condition of their child. The differences come in terms
of the coping mechanisms they adopt, their perception of the
disease and the social support they are bound to seek.
Extent of Participation
Giallo and Gavidia-Payne (2006) emphasize on the participation
of parents during the hospitalisation of their chronically
ill child, as a way of alleviating anxiety in both the child
and the parents. The participation ensures that care givers
have the opportunity of discussing the condition of child
continuously and therefore the parents will have a greater
understanding of the condition of their child. Furthermore,
parents will be conversant of the medication, the procedures
and other activities done by caregivers and will be therefore
less prone to anxiety. For the parents whose participation
is limited, anxiety is usually caused by the diminishing level
of understanding of the efforts of the health care and of
the illness.
Number of Children
The number of children the parents will have to take care
of is also determines the pressure that will be placed upon
the parents and subsequently the response (Giallo & Gavidia-Payne,
2006). This correlation is drawn from the fact that level
of response is affected by the extent to which the ill child
requires care by parents. When there are other children to
take care, pressure will be increasing with increase in the
number of children.
Factors Influencing Response by
Siblings
Nature of Illness
The nature of the chronic illness determines the response
of the siblings to the situations pertaining to the illness
(Stoneman, 2005). Some diseases are more prone to stigmatization
and siblings may have a much difficult time accepting the
condition of their brother or sister. Furthermore,
varied illnesses disrupt the normal routines of families to
different degrees.
Age of the Siblings
Children develop understanding of situations as they grow
older. Therefore, age is an important factor determining the
way children respond to different challenging circumstances.
Studies have identified adolescents as contributing the least
towards the care of a critically ill brother or sister (Hardy
& Prior, 2001). During the adolescent age, children are
already dealing with varied emotions due to hormonal changes
and this may affect how they respond. Temperament of a sibling
determines to a greater degree how he/she will respond to
the illness of a brother or a sister and the reduced parental
attention. In essence each child will respond differently
to the various circumstances that emanate when their brother
or sister has been hospitalised. Some of them will respond
very positively when called upon to offer assistance to the
ill child but will not take it very well when the parents
concentrate most of their attention to the ill child (Stoneman,
2005).
Coping Mechanisms
As explained by Kiernan, Guerin and MacLachlan (2005) and
Koopman et al. (2004), during the periods of extensive emotional
stress, individuals are prone to developing psychological
and even physiological complications. It is therefore important
that health care providers strive to ensure that parents adopt
healthy coping mechanisms that encourage positive behaviour
by the siblings. Furthermore, the siblings can also be educated
and encouraged to develop a more positive approach during
hospitalization of their brother or sister.
Due to the extensive researches that have been documented
concerning the response of siblings and parents of children
who are chronically ill, it is obvious that coping mechanisms
have been documented. However, one important realization is
that health care providers are the major driving force towards
the awareness of holistic care for parents and siblings (Koopman
et. al, 2004). Health care providers are already conversant
with various medical conditions and may anticipate the kind
of response adopted by parents and siblings. It is therefore
upon health care providers to extend their services to parents
and siblings aimed at equipping them with behavioural approach
when responding to the circumstances presented when a child
is chronically ill. Furthermore, the lack of experience by
parents and siblings require nurses to identify the possibility
of destructive behaviours and recommend treatment (Lam, Chang
& Morrissey, 2006).
Working hand in hand with care givers
has been identified as one of the important mechanisms that
may help the parents deal with the condition of their child
(Lam, Chang & Morrissey, 2006). Therefore, it is proposed
that parent adopt a close contact with care givers. Getting
adequate information from care givers relating to the progress
of the child is also important and this is usually obtained
when the parents work together with care givers. In most instances,
parents who develop anxiety due to the condition of their
child do so because they adopt a negative approach towards
the care givers. The negative approach is usually nurtured
by a prolonged period of misinformation or lack of information.
The parents are therefore subjected to speculation which emanates
to anxiety and uncertainty (Mitchell, 2004; Ramritu &
Croft, 2009).
Parents are also coping with the
situation by seeking of support services from various quarters.
According to Ramritu and Croft (2009), the sources of support
as revealed by parents were spouse, other family members,
the church and other parents undergoing the same challenging
moments. Other sources of support also included literature
that has documented information concerning the condition of
the child. A significant number of parents also revealed that
they seek for sought professional help (Lindblad, Rasmussen
& Sandman, 2005).
Coping mechanisms of children mostly
relate to how the specific condition has affected the family
in general. In a study conducted by Appleton and Hames (2009),
on the perception of siblings of a child with epilepsy, it
was realized that most children perceived and responded to
the condition positively. However, the research also revealed
that very few of the siblings who perceived and responded
to the condition negatively were willing to participate in
the research. Siblings first responded by protesting to the
apparent concentration of the parents on the condition of
the ill child, secondly the siblings resort to withdrawal
and finally to total detachment.
According
to Cullen and Barlow (2004), parents should be encouraged
to enrol in training and support programme. They realized
that parents who enrolled in training programmes had the capacity
to manage well children with various forms of disability.
Although disability is just one aspect
that can lead to hospitalisation, the challenges faced by
parents are roughly similar in terms of the extent of care
required. The increase in confidence during care giving reduces
parental anxiety and therefore the parent is able to manage
the situation effectively. This will ensure that the parent
has the time, energy and mental capacity to address the concerns
of the siblings of the sick child effectively.
Interventions & Recommendations
In most instances, parents and siblings of the chronically
ill child are inexperienced and are completely unaware of
what to expect and how to respond. It is therefore upon the
health care provider to anticipate the challenges that might
be experienced by parents and siblings, and offer specialized
advice. It is also important that nurses offer information
that would be beneficial to parents and siblings instead of
waiting to be asked. This not only demonstrates holistic care
but also gives the parents and siblings with confidence in
the care provided.
Parents on the other hand are required
to work together with health care providers in terms of seeking
clarification on the child's illness. Furthermore, they should
also seek advice on how to respond positively to the situation
and even offer assistance to the other siblings. In addition,
they should look for professional help when they feel that
the situation might get out of hand (Lam, Chang & Morrissey,
2006).
Health care providers need to take
such factors into account when providing services to families
with a chronically ill child. This is because some of these
factors may have negative effects on the well being of the
child. Furthermore, an approach that also cares for the needs
and concerns of the siblings is more holistic.
With regard to the findings of a
research conducted by Kiernan, Guerin and MacLachlan (2005),
the importance of letting children encourage one another cannot
be overemphasized. The research sought to identify the recommendations
of children during their stay in a hospital. The concerns
of most children were that during hospitalisation they would
not be able to do the interesting things that they used to
do. Extrapolating these findings to the siblings of hospitalised
children, implies that among their fears is being deprived
of the time to undertake interesting activities, either because
their parents are busy taking care of the sick child or because
everybody is so sad to engage in any activity. Siblings of
hospitalised children should therefore be allowed time for
play. For instance, a health institution can organize outdoor
activities for siblings of hospitalized children as a way
of creating the platform where they can share their fears
and concerns. Such an initiative can relieve the parents of
a significant load while at the same time being therapeutic
for the siblings. Furthermore, the nurses and the health care
institution can also seek for the views of siblings of hospitalised
children on ways in which both the parents and the hospital
can ensure that they are psychologically and physiologically
healthy (Cohen et. al, 2008).
This research has established that
environment play a very key role on how siblings of hospitalised
child respond to the situation. According to Aujoulat et al.
(2006), it was recommended that the health care facility where
a child is hospitalised has the responsibility of ensuring
that the environment is sensitive to siblings of all developmental
stages. Such an environment should include playrooms where
siblings can play during visits. This will help the parents
manage the siblings and the sick child more effectively (Brannon
& Feist, 2009).
Finally, it is important for the
siblings to be granted consideration when dealing with the
challenges facing the parents. In most instances; care givers
assume that siblings are not affected and when they are the
parents can easily handle they problems. However, the findings
of this study indicate that the siblings may even suffer more
in silence. With regard to their developmental stages and
their level of understanding, Nurses may involve the siblings
by addressing their concerns with regard to the illness, shedding
more light concerning the illness and perhaps explaining to
them the psychological situation faced by their parents. In
return siblings will develop greater understanding and will
even offer each other comfort in addition to offering comfort
to parents (Koopman et. al, 2004). (See
Appendix 1)
Conclusion
Parents should take more responsibility to have a close monitoring
of their hospitalised child and also at the same time should
maintain the balance between siblings, so that the bonds between
siblings remains in a healthy manner and there won't be any
negative changes or reactions in the siblings of hospitalised
child . They should also obtain that siblings must involve
in caring of their hospitalised child where ever possible
and maintain good environment between them. It is only natural
for parents of hospitalised children to want to be actively
involved in activities aimed at ensuring the well being of
their children. A family is the basic unit of every society
and it provides persons members with the sense of comfort
and belonging and identity. Extensive literature has covered
the psychological effects experienced by the hospitalised
child, but the effect of hospitalisation of one child has
on the parents and the siblings have not been well recognized.
However, it is well documented that the role played by parents
of children in paediatric care is significant for the psychological
and emotional well being of the children. In addition, parental
involvement has also been identified to be beneficial to the
parents. Children perceive illnesses differently and it is
important that this aspect is taken into consideration when
seeking ways to help the parents address the needs of siblings
of a hospitalised child. Siblings are also affected when their
brother or sister has been hospitalised or is revering from
a chronic illness. Children are the mostly ignored when providing
health care. In most instances, the welfare of children is
usually left aside and only the parents are considered. However,
this project has revealed that children also experience physical
and other emotional challenges. Therefore, it is important
that the health care facility take care of the chronically
ill child, address the needs of parents, and keep into consideration
the needs of siblings as well. This will ensure that health
care to the ill child and the family is provided in a holistic
manner. This report strives to identify the relationship between
hospitalised children and their parents and siblings, and
to critically review the literature in relation to the environment
and the process of hospitalisation on the siblings' psychological
and physiological health, their behaviours and attitudes,
and responses to illness of the brothers or sisters.
Appendix 1
Recommendations
Meet Siblings Needs
- Recognize that illness and hospitalization affects the whole
family in different ways.
- Remember that honest and ongoing communication helps children
understand the events or situation affecting their family.
- Reassure siblings that they most likely will not also become
sick or injured.
- Continue daily routines as much as possible. Children do
better keeping their usual schedules and rules for home, school
and other activities.
- It's the little things that count. Help children feel valued,
loved and remembered as an important part
of their family, whether you are in the hospital or at home.
Communicating With Children
- Give them information they can understand.
- Talk to them about how they feel about their brother or
sister being in the hospital.
- Discuss their concerns about visiting the hospital.
- Acknowledge how hard the situation is and let them know
you appreciate their efforts.
- Keep your kids connected. Ways to do this include:
Call or write
emails
Share drawing or
photos
Make videos or
voice recordings of stories, songs or messages
Create and exchange
CDs of favourite music
Make a get-well
banner
School & Community
Support
When you are not able to be with your other children, arrange
for a caring adult such as; grandparent, neighbour or friend,
to spend time with them.
Choose someone at your children's school, like a teacher,
counsellor or coach, to help support them during this time.
Let others help your family by running errands, making meals
or driving carpools. This may allow you more free time to
spend with all of your children.
Helping Siblings Feel Included
During the hospitalisation, siblings can participate in activities
at home, while visiting my let them feel more included.
Home Activities
- Choose photographs of family, friends, favourite trips or
any other familiar objects to bring to the hospital to decorate
their brother or sister's room.
- Create artwork for their brother or sister's hospital room.
- Help pick their brother or sister's favourite things to
send to the hospital such as; stuffed animals, clothes, movies
or pictures.
-Write letters and cards to keep their brother and sister
informed about news at home or at school.
- Design a door sign with their brother or sister's name and
messages for visitors.
- Record favourite songs, stories, jokes and greetings to
send to the hospital. Voices of familiar people can be comforting.
- Put together care packages to send to the hospital. They
can include notes, drawings, gifts or pictures from home.
Hospital Activities:
- Invite siblings to visit whenever possible and appropriate.
- Prepare siblings for what they will see and hear. If their
brother or sister's behaviour and appearance are different
than normal, describe how their brother or sister may look
or act. Child life specialists can help provide support for
visits.
- Encourage siblings to visit the Child Life Department's
Activity Rooms such as; the Playroom, - - School Room, All-Stars
Technology Room and Teen Lounge. They can attend with their
brother or sister, or visit on their own if appropriate.
- Create opportunities for siblings to engage with their brother
or sister if appropriate. They can create art projects together,
read books, attend programming and play together.
- Introduce siblings to familiar figures in the hospital who
are involved with their brother or sister's care. These may
include doctors, nurses and child life specialists.
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